Friday October 31 , 2014
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Resources for Caregivers of All Ages

A Place for MomA Place for Mom launched in 2000 to give seniors and their families an easier way find senior care. Although our company name focuses on "mom," we help dad too! As well as uncles, aunts, brothers and sisters - anyone who is faced with finding the best senior living options for their loved ones. www.aplaceformom.com

 

Adult Day CareAdult Day Care -Adult day care centers are senior care locations that are open during normal business hours and provide various care services, supervision and social interaction for the elderly. Seniors generally attend adult day care on a scheduled basis which can provide relief to caretakers, such as family members or caregivers. Seniors who attend adult day care can benefit from the increased companionship and social interaction with others. www.adultdaycare.org/

 

American Alzheimers logoAlzheimer's Association - seeks to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. 1-800-272-3900 www.alz.org

 

Alzheimer's Foundation of America Alzheimer's Foundation of America The Alzheimer's Foundation of America's mission is ”to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.” www.alzfdn.org

 

Alzheimers for teensAlzheimer's Foundation of American Teens - seeks to mobilize teenagers nationwide to raise awareness of Alzheimer's disease and to engage teenagers in the cause. 1-866-AFA-8484 www.afateens.org

 

American Psychological Assoc logo The American Psychological Association’s Family Caregiver Briefcase is now available at http://www.apa.org/pi/about/publications/caregivers/index.aspx.  An online resource for those who work with family caregivers, the Briefcase can help professionals recognize, anticipate, and reduce the stresses on family caregivers across the life span.  It provides guidance on how to assist caregivers through individual and organizational practice, research, teaching, and community service.  Segments of the briefcase are also useful for family caregivers. 

The Caregiver Action Network - offers free membership for all family caregivers and benefits including formation, education, publications and advocacy. 1-301-942-6430 www.caregiveraction.org/

 

 The Caregiver Hour is a Tampa Bay radio (WHNZ 1250 AM) show which supports caregivers by providing encouragement, advice and helpful resources. Recognizing that many caregivers want to be authentic while setting healthy boundaries, the program seeks to guide them towards a place of purposeful wisdom. A place where they can look at the big picture and make conscious decisions rather than reacting to the fear and panic that often set in after someone in their life falls, becomes ill, or experiences another type of crisis.  thecaregiverhour.com/

The Caregiver Resource Network (CRN) is a collaboration of nearly 100 West Michigan organizations dedicated to providing for the needs and welfare of family and professional caregivers within the community that will improve
the quality of life for caregivers and their care recipients.  The award winning CRN website offers a wide variety of educational resources for family and professional caregivers including articles, fact sheets, and the free downloadable "Caregivers Corner" radio program. The CRN website is at www.caregiverresource.net

 

Carers Australia has collated an extensive list of resource materials that have been sourced nationally and internationally. They are for use by people who are supporting, or want to support, young carers in secondary schools. This may include school administrators, teachers, counsellors, support workers, parents and guardians. www.carersaustralia.com.au/about-carers/young-carers2/young-carers-in-secondary-schools/

 

Center for disease ControlThe National Prevention Strategy is a comprehensive plan that will help increase the number of Americans who are healthy at every stage of life. Created by the National Prevention, Health Promotion, and Public Health Council in consultation with the public and an Advisory Group of outside experts, the Strategy recognizes that good health comes not just from receiving quality medical care but from stopping disease before it starts.  www.cdc.gov/features/preventionstrategy/

 
caps for caregivers logoChildren of Aging Parents (CAPS) - the oldest US caregiving organization offering information and referrals, support groups, educational outreach, speaker's bureau and publications as it seeks to heighten public awareness that the health of the family caregivers is essential to ensure quality care of the nation's growing elderly population. 1-800-227-7294 www.caps4caregivers.org

FCAFamily Caregiver Alliance (FCA) - a public voice that supports and sustains caregivers throughout the country with information, education, services, research and advocacy. 1-800-445-8106 www.caregiver.org

 

The International Network for Caregiving Children (INCC) was established in 2010 in response to a growing recognition of the role of caregiving children in resource poor settings. The INCC seeks to provide academics, NGO practitioners, civil society groups and caregiving children and youth with a platform to share and develop their knowledge about the circumstances that characterise the lives of caregiving children. www.caregivingchildren.org/index.html


Generation UnitedGenerations United - seeks to improve the lives of children, youth, and older people through intergenerational collaboration, public policies, and programs for the enduring benefit of all. 1-202-289-3979 www.gu.org

 

Logo for Medical Assistant dot netOnline Medical Assistant Programs. - has provided an extensive list of resources for all those affected by Alzheimer’s. From research to personal accounts, suggested activities to support networks, we have gathered all things Alzheimer’s. If you are looking for books, online resources, communities, and medical centers on Alzheimer's, then browse through the sites below to find what you need. Check out the "A Caregivers Guide to Alzheimers Disease "

 

Mespthelioma Group Every year, 12.7 million people in the world learn that they have cancer. Even though cancer is a widespread disease, each individual who suffers from cancer is uniquely affected. Family and friends of loved ones who are fighting cancer are often confused and worried. It can be difficult to cope with a diagnosis of cancer. See more at: http://www.mesotheliomagroup.com/understanding-cancer/#sthash.OpKL5AvW.dpuf

 

Mortgage Calculator LogoHome safety can mean many different things; it means playing safe, eating safe, bathing safe and living safe. Keeping our homes safe will help to make them a fun and healthy place to bring our friends and family; but if we don’t follow proper home safety, we might get hurt or cause someone we love to get hurt. The following resources have important information and can help us learn more about home safety, so that we can all do our part to make our home a safe place to live and grow. www.mortgagecalculator.org/helpful-advice/home-safety-for-kids.php



NACNational Alliance for Caregiving (NAC) - an organization created in support of family caregivers and the professionals who assist them; and to increase public awareness of issues facing caregiving families. 1-301-718-8444 www.caregiving.org

 

 

National Multiple SclerosisNational Multiple Sclerosis Society - helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward. 1-800-344-4867 www.nmss.org

Parent to Parent of Georgia provides support and information services and training and leadership opportunities for families who have children and youth with disabilities.  p2pga.org/index.php

 

small veteran's affairs logoThe Department of Veterans Affairs  (VA) offers assistance to caregivers.  Caregivers provide a valuable service for Veterans and are "partners" with VA in providing excellent health care. Caregivers allow Veterans to remain in their own home and also play an important role in supporting Veterans who are hospitalized or living outside their home. www.caregiver.va.gov

 

 

The VFW’s National Military Services (NMS) is the driving force behind our troop and family support efforts. Home to the ever-popular, ever-vital VFW Operation Uplink™ program, the Unmet Needs program and the Military Assistance Program (MAP), NMS has made a significant impact in the lives of millions of service members and their families. http://www.vfw.org/Assistance/



Well Spouse Foundation - "When one is sick...two need help" is the slogan of the international support organization for wives, husbands and partners of the chronically ill and/or disabled. 1-800-838-0879 www.wellspouse.org

 

Internet Support:
a.    www.caregiver.com
b.    www.caregivershome.com
c.    www.caregiving.com
d.    www.strengthforcaring.com
e.    www.youngcarers.net
f.    www.youngcarers.net.au
g.   ZocDoc: Find Healthcare Providers by City & State

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

   

International Young Carers Manual

The International Young Carers Manual is a 181 page document that provides a list of resources world wide.  According to the authors: " The purpose of this document is to create a practical, easy to follow directory of young carer programs internationally.  It aims to be a resource for individuals and organisations looking for innovative ways to support young carers who have a  parent with a mental illness and to facilitate the collaboration between agencies state wide, nationally and internationally. It became apparent that some countries have a minimal to nonexistent services for young carers, and this resource may be able to assist them with knowledge of what is possible and contacts of people who are working in this area on any specific program."

The Manual can be found here in PDF format.

   

Books for Young Caregivers: Novels About Mental Illness

Many of the main characters in these books are caregivers of a mentally ill parent or have, because of the illness, taken on responsibilities beyond what is typical for their age.

Brown, Susan Taylor, Hugging the Rock
Rachel and her father grow closer when Rachel's mother, who suffers from bipolar disorder, runs away from home. (Grades 5-8)

Fischer, Jackie, An Egg on Three Sticks
Abby's household gets more and more chaotic when her mother becomes mentally ill and is hospitalized. (Grade 7-up)

Haddix, Margaret Peterson, Don't You Dare Read This, Mrs. Dunphrey
Tish uses a journal to sort out her feelings, including her difficulties with a depressed mother. (Ages 12-up)

Johnson, Lindsay Lee, Worlds Apart
Winnie's mother becomes depressed after the family's move from Chicago to rural Minnesota. (Grades 8-11)

Marchetta, Melina, Saving Francesca
Sixteen-year-old Australian schoolgirl Francesca is in for a tough year when her usually optimistic mother, Mia, becomes depressed and fails to get out of bed one morning. (Ages 12-up)

Pearson, Mary E., A Room on Lorelei Street
Seventeen-year-old Zoe moves to a rented room when she can no longer cope with her alcoholic mother and the fallout from her father's possible suicide. (Grade 10-up)

Peters, Julie Anne, Define "Normal"
High school students Antonia and Jazz couldn't be more different, but their peer-counseling sessions help Antonia cope with her parents' divorce and her mother's depression. (Grade 7-10)

Powell, Randy, Run If You Dare
Gardner hopes to find some discipline in his own life while he watches his father's life succumb to despair. (Ages 12-up)

Quarles, Heather, A Door Near Here
Fifteen-year-old Katharine has her hands full: running the household, caring for three siblings, and concealing her mother's alcoholism. (Ages 12-up)

Rinaldi, Ann, Or Give Me Death
In this historical novel based on the life of Patrick Henry, his daughters, ages nine and sixteen, tell the story of their mother's mental illness and confinement to the cellar. (Grades 7-9)

Trueman, Terry, No Right Turn
Following his father's suicide, Jordan loses himself by joyriding in a vintage car. (Grades 8-11)

Warner, Sally, How to Be a Real Person (In Just One Day)
Eleven-year-old Kara wants no one, including her father, to find out about her mother's deteriorating mental health. (Ages 10-14)

Wilson, Jacqueline, The Illustrated Mum
Ten-year-old Dolphin and her teenage sister, Star, struggle to pick up the pieces while their mom, the charismatic, tattoo-covered Marigold, copes with bipolar disorder and a chaotic love life. (Grades 5-7)

Young, Janet Ruth, The Opposite of Music
Along with his mother and sister, fifteen-year-old Billy will do almost anything to save his father from a life-threatening depression. (Ages 12-up)

Zemser, Amy Brownwen, Beyond the Mango Tree
A white American girl living in Liberia confronts poverty and social injustice while dealing with her unstable mother, who is also severely diabetic. (Ages 10-up)

This reading list was compiled by Janet Ruth Young from the recommendations of librarians on the Young Adult Library Services Association book discussion list.

   
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